To most people, a shirt is a basic and necessary garment of clothing, used to keep one covered or warm. To the families of the Phelan-McDermid Syndrome Foundation, however, a shirt truly is So. Much. More!
In an effort to raise both funds and awareness for the rare syndrome affecting our son Jack, we, The Randolph family, started a t-shirt campaign in 2014 called Phelan Lucky. The premise was simple… create a great shirt we could wear on the St. Paddy’s Day loop that would ignite some conversation about the odd spelling of “Phelan” in place of the word “feeling”. This would allow us to educate people about Phelan-McDermid Syndrome in a fun and engaging way.
It worked! Now in its 6th year, the Phelan Lucky campaign has sold over 19,000 shirts and raised well over $250K for the Phelan-McDermid Syndrome Foundation. While the money is so important for our grassroots organization, we don’t want that to overshadow the awareness that the campaign has brought to our rare disease community. To the families of the PMSF, Phelan Lucky is more than just a shirt. It is a symbol of hope that life will one day be easier for our #PMS children. It is a catalyst urging the scientific community to take notice of us, and take a chance on a small but determined group of families looking to create a better quality of life for their kids. It is a billboard that lets people know that while life can be challenging, we remain grateful and lucky each and every day!
So, while to many, a shirt is JUST a shirt, to us it is not. I can only ask that you take a moment to click on the link below, consider purchasing a t-shirt and join me in spreading awareness for this exceptional foundation and some truly remarkable people.
Read More about the Foundation